{"id":420,"date":"2023-04-28T12:51:13","date_gmt":"2023-04-28T16:51:13","guid":{"rendered":"https:\/\/creatineinfo.nordregistry.com\/the-creatineinfo-registry\/"},"modified":"2023-04-28T12:51:13","modified_gmt":"2023-04-28T16:51:13","slug":"the-creatineinfo-registry","status":"publish","type":"post","link":"https:\/\/creatineinfo.iamrare.org\/fr\/the-creatineinfo-registry\/","title":{"rendered":"The CreatineINFO Registry"},"content":{"rendered":"<p><img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/creatineinfo.iamrare.org\/wp-content\/uploads\/sites\/87\/2025\/02\/News_wfssky-225x300.jpg\" alt=\"\" width=\"225\" height=\"300\" class=\"alignright size-medium wp-image-368\" srcset=\"https:\/\/creatineinfo.iamrare.org\/wp-content\/uploads\/sites\/87\/2025\/02\/News_wfssky-225x300.jpg 225w, https:\/\/creatineinfo.iamrare.org\/wp-content\/uploads\/sites\/87\/2025\/02\/News_wfssky-768x1024.jpg 768w, https:\/\/creatineinfo.iamrare.org\/wp-content\/uploads\/sites\/87\/2025\/02\/News_wfssky-1152x1536.jpg 1152w, https:\/\/creatineinfo.iamrare.org\/wp-content\/uploads\/sites\/87\/2025\/02\/News_wfssky-1536x2048.jpg 1536w, https:\/\/creatineinfo.iamrare.org\/wp-content\/uploads\/sites\/87\/2025\/02\/News_wfssky-195x260.jpg 195w, https:\/\/creatineinfo.iamrare.org\/wp-content\/uploads\/sites\/87\/2025\/02\/News_wfssky-525x700.jpg 525w, https:\/\/creatineinfo.iamrare.org\/wp-content\/uploads\/sites\/87\/2025\/02\/News_wfssky-scaled.jpg 1920w\" sizes=\"auto, (max-width: 225px) 100vw, 225px\" \/>Le CreatineINFO Registry cr\u00e9e une plateforme permettant aux patients du monde entier de faire entendre leur voix et de partager des informations sur les syndromes de d\u00e9ficit en cr\u00e9atine c\u00e9r\u00e9brale (CCDS, de l\u2019anglais Cerebral Creatine Deficiency Syndromes), une maladie qui provoque des crises convulsives, des troubles de la parole, une d\u00e9ficience intellectuelle, un autisme et une hypotonie musculaire. Actuellement, il n\u2019y a pas de rem\u00e8de pour les CCDS. Con\u00e7ue avec la contribution de scientifiques et de patients, cette ressource mondiale fournit des donn\u00e9es destin\u00e9es aux chercheurs pour faire progresser le d\u00e9veloppement de m\u00e9dicaments et d\u2019options de traitement afin de contribuer \u00e0 am\u00e9liorer les soins aux patients atteints de CCDS. <a href=\"#\" target=\"_blank\">Rejoignez-nous d\u00e8s maintenant et laissez vos donn\u00e9es raconter votre histoire\u00a0!<\/a><\/p>\n<p>Recevez r\u00e9guli\u00e8rement des actualit\u00e9s sur les CCDS en vous inscrivant \u00e0 notre lettre d\u2019information sur <a href=\"https:\/\/creatineinfo.org\/ccds-news\/\" target=\"_blank\" rel=\"noopener\"><strong>https:\/\/creatineinfo.org\/ccds-news\/<\/strong><\/a> et <strong><a href=\"https:\/\/creatineinfo.iamrare.org\/contact-us\/\">en nous suivant sur les r\u00e9seaux sociaux.<\/a><\/strong>.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Le CreatineINFO Registry cr\u00e9e une plateforme permettant aux patients du monde entier de faire entendre leur voix et de partager des informations sur les syndromes de d\u00e9ficit en cr\u00e9atine c\u00e9r\u00e9brale (CCDS, de l\u2019anglais Cerebral Creatine Deficiency Syndromes), une maladie qui provoque des crises convulsives, des troubles de la parole, une d\u00e9ficience intellectuelle, un autisme et &hellip; <\/p>\n<p class=\"link-more\"><a href=\"https:\/\/creatineinfo.iamrare.org\/fr\/the-creatineinfo-registry\/\" class=\"more-link\">Continue reading<span class=\"screen-reader-text\"> \u00ab\u00a0The CreatineINFO Registry\u00a0\u00bb<\/span><\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"inline_featured_image":false,"footnotes":""},"categories":[19],"tags":[],"class_list":["post-420","post","type-post","status-publish","format-standard","hentry","category-non-classifiee"],"acf":[],"_links":{"self":[{"href":"https:\/\/creatineinfo.iamrare.org\/fr\/wp-json\/wp\/v2\/posts\/420","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/creatineinfo.iamrare.org\/fr\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/creatineinfo.iamrare.org\/fr\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/creatineinfo.iamrare.org\/fr\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/creatineinfo.iamrare.org\/fr\/wp-json\/wp\/v2\/comments?post=420"}],"version-history":[{"count":0,"href":"https:\/\/creatineinfo.iamrare.org\/fr\/wp-json\/wp\/v2\/posts\/420\/revisions"}],"wp:attachment":[{"href":"https:\/\/creatineinfo.iamrare.org\/fr\/wp-json\/wp\/v2\/media?parent=420"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/creatineinfo.iamrare.org\/fr\/wp-json\/wp\/v2\/categories?post=420"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/creatineinfo.iamrare.org\/fr\/wp-json\/wp\/v2\/tags?post=420"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}