CreatineINFO Patient Registry & Natural History Study
Welcome to the CreatineINFO Registry!
The CreatineINFO Registry serves the Cerebral Creatine Deficiency Syndromes (CCDS) community. This platform is sponsored by ACD for patients and caregivers to support research.
For more information about how to register, click here.
For Patients
Get Involved
Information collected during this study may help provide new insights and enable patients and researchers to collaborate in the CCDS community.
For Researchers
Drive Research
Are you interested in furthering your CCDS research with data from this registry? Contact us for details on how we may collaborate.