Contact Us

CreatineINFO Registry

Contact Us

Sponsor

Association for Creatine Deficiencies
6965 El Camino Real, Suite 105-598
Carlsbad, CA 92009
https://creatineinfo.org/


Registry Contact

Emily Reinhardt
registry@creatineinfo.org
https://creatineinfo.org/


IRB

North Star Review Board
9 Cortland Rd., Freeport, ME 04032
https://learningirb.org/
info@northstarreviewboard.org


Social Media

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CreatineINFO Registry | YouTube Channel
CreatineINFO Registry | TikTok
CreatineINFO Registry | Newsletter Signup


Institutional Review Board (IRB)

An Institutional Review Board, for the purpose of protecting your/the Study Participant’s rights, has reviewed this registry. An Institutional Review Board is a group of people who are responsible for protecting the rights and welfare of people who participate in studies. For questions about your rights as a Study Participant in this Registry or to discuss other study-related concerns or complaints with someone who is not part of this Registry team, you may contact North Star Review Board at https://learningirb.org.


Visit the National Organization for Rare Disorders home page at rarediseases.org.