CreatineINFO Registry

The CreatineINFO Registry creates a platform for patients around the world to strengthen their voices and share information about Cerebral Creatine Deficiency Syndromes (CCDS), a disease that causes seizures, impaired speech, intellectual disabilities, autism, and low muscle tone. CCDS currently has no cure. Designed with the input of scientists and patients, this global resource provides data for researchers to advance drug development and treatment options to improve CCDS patient care. Join now and let your data tell your story! Get regular CCDS news updates by signing up for our newsletter at https://creatineinfo.org/ccds-news/ and following us on social media.

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